Supporting - Educating - Advocating
The Noonan Syndrome Foundation (NSF) supports the vital role that a Noonan Syndrome (NS) or RASopathies clinic can play in improving the lives of those impacted.
The NSF maintains a list of doctors and medical clinics available.
Find out and become involved in studies, projects, or other research activities promoting the support, education and/or advocacy of those affected by Noonan Syndrome.
The NSF Patient Registry can also be found here.
Guides to some of the different and critical medical issues that you should be aware of related to Noonan Syndrome, as well as resources for learning more about each of them.
Here is where you will find the NSF:
- Blog
Hear from our Resident and Guest Bloggers and all things Noonan Syndrome.
- Useful links
- Video library and links
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Noonan Syndrome Information
Noonan Syndrome (NS) impacts every member of the family, not just the person with the syndrome.
This section is dedicated to the siblings, parents and other family members of people with NS and their need for understanding, information, and support.