Resources

Projects & Opportunities

Research Strategy

The Noonan Syndrome Foundation's goal is to advocate for effective research and medical treatments for individuals living with Noonan Syndrome. The Foundation serves as a conduit between the medical community and the families for research and survey purposes; to ensure that they can keep the research on Noonan Syndrome as updated as possible. We want to ensure that research articles are also available to medical professionals, therapists, schools and most importantly the families to help better understand the different aspects of Noonan Syndrome.

Need Help Getting Participants For Your Study or Trial? Contact us and we will help you get the word out.

Phone: 866-875-8928
FAX: 866-875-1258
Email us at info@teamnoonan.org

Industry Opportunities

We want to work closely with you at every stage of NS therapeutic development to advance the most promising ideas for breakthrough treatments. Please contact us at: info@teamnoonan.org for details.

Novel Partnerships

The Foundation enthusiastically partners with companies that wish to benefit from our extensive network and expertise. Contact us if you have an idea for how your organization can support our efforts at: info@teamnoonan.org.

Current Work

Noonan Syndrome Foundation Online Support Group

https://www.facebook.com/groups/Noonansyndromefoundation/

Noonan Syndrome Foundation Facebook Main Page ("LIKE" this one)

https://www.facebook.com/NoonanSyndromeFoundation

Attention & Executive Function Concerns in Children with Noonan Syndrome (Teacher Guide)