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Events

9th International RASopathies Symposium
UPCOMING

9th International RASopathies Symposium

July 25 – 27, 2025

Collectively, RASopathies comprise one of the largest groups of congenital disorders worldwide estimated to affect ~1:2000 individuals. RASopathies share similar features caused by aberrant activation of signals within and between cells. The proposed symposium will offer the opportunity for international researchers, doctors, advocates, and families with RASopathies to learn from each other about the genetics and organ systems affected by these conditions.

NSF Family Conference

Summer of 2026

The Noonan Syndrome Conference is held biannually in alternating cities around the USA. Families and individuals travel to the conference to hear the latest medical information from our panel of experts, participate in activities, and leave the conference with new lifelong friends. Connecting with others who understand can be life-altering! We hope you can join us in the Summer of 2026 in Austin, TX.

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Stay tuned for more information! Join our mailing list and follow us on social media to be the first to hear more details.

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