About Us

Who are we?

ABOUT US

The Noonan Syndrome Foundation (NSF) is the leading 501(c)(3) non-profit, charitable Noonan syndrome (NS) organization. Our mission is to Support, Educate, and Advocate for those with Noonan Syndrome.

HOPE & HELP NOW

We know that effective medical treatments may be years away and that the NS community needs our help now. That is why the NSF provides an online support group; to help each other cope with the challenges of raising a child with a medically involved disorder. Please join our private Facebook Group titled the Noonan Syndrome Foundation.

Did you know that NS may be as common as Down syndrome?NS may impact 316,600 people in the United States and 7,094,286 people worldwide.


Did you know that NS is complex and can cause issues is any/every area of the body?The NS community needs worldwide support.

Leadership

TEAM NOONAN

The Noonan Syndrome Foundation (NSF) is a non-profit corporation. Our leadership team, board of directors and department chairs are committed to programs centered on our core mission: To Support, Educate and Advocate for those with Noonan Syndrome.

MEDICAL ADVISORY BOARD

  • Dr. Jacqueline Noonan
  • Dr. Rene Pierpont
  • Dr. Amy Roberts
  • Dr. Alicia Romano
  • Dr. James Yurcek
  • Dr. Bruce Gelb
  • Dr. Mary Ella Pierpont
  • Dr. Patroula Smpokou
  • Dr. Briggs Carroll

  • Dr. Jacqueline Noonan
  • Lifetime Honorary Chair
    Medical Advisory Board

EXECUTIVE LEADERSHIP TEAM


  • BOARD OF DIRECTORS

  • Rebekah Busbee President, Board of Directors
  • Ann Yurcek Vice President, Board of Directors
  • Cyndy Hartman Treasurer, Board of Directors
  • Cari Conant Secretary, Board of Directors
  • Katie Thorstenson Member, Board of Directors
  • Leslie Josling Member, Board of Directors

  • DEPARTMENT CHAIRS

  • Stephanie Lennon Chair of Educational Advocacy stephanie@teamnoonan.org
  • Travis Lennon Chair of Fundraising travis@teamnoonan.org
  • Alicia Smith Chair of Medical Information alicia@teamnoonan.org
  • Kimberly Reid Chair of Support for Teens and Adults with Noonan Syndrome kimberly@teamnoonan.org